Cheers to 2017!

Many say 2016 was the pits.   And in many ways it was- a lot of great artists died, a divisive political campaign, nations in crisis, terrorism and hate. At Hope Scarves we lost dear friends to cancer.

waterfall

Yet, for me, 2016 was also a whole lotta awesome. I nervously settled into this existence of living life to the fullest despite metastatic breast cancer. And, by the grace of God I had a year of strength and health as my scans continued to show NED – no evidence of active disease.   I celebrated my 40th birthday – repeatedly. A wonderful excuse to travel, pop champagne and connect with friends and family near and far. Hope Scarves had a laughter filled year of growth and continued success – national partnerships, increasing interest in our program and record fundraising success.   You can read more in our end of year newsletter. Our children are at really fun ages (almost 9 & 11). They are independent yet still love to spend time with us. Our family had great adventures together – camping in Grand Tetons, skiing in Colorado, Hawaii and a Michigan summer. I embraced moments of feeling so alive – midnight swimming in Lake Michigan, yoga in the rising sun, snorkeling with sharks, snow angels, one more hug.  I love these moments when life is pulsing through my veins.

I’m sentimental – those who know me know I’m the one who initiates going around the table to say things like “what are you most thankful for” at Thanksgiving and your “hopes for the year to come” at New Years. The ending of one year and the start of the next are monumental in my sentimental mushiness.   It’s a new chapter in our story. What will happen in 2017? How will this year shape our lives?

It was these first days of the new year of 2014 that I stretched intensely to ease the pain in my low back… then, the Tuesday evening when our family’s world turned upside down with the news that the pain was cancer. When we rang in 2014 – who would have imagined what was ahead? Not me.

The uncertainly of a new year can be overwhelming – especially for those facing challenges. I hold this fear in my heart and hope light can pierce through the darkness as we celebrate the start of a new year.
Most certainly the silver lining in this hurricane of cancer is the realization of how fragile and precious life is. When facing a terminal diagnosis – the right now is more meaningful. When the future is uncertain, living in the moment takes on an entirely bigger meaning. I’m not alone in this realization. I have many friends who live in this same, beautiful and painful way. Indeed, when the future is uncertain we truly embrace every moment. Not in a cliché. In our reality. The mundane, the boring – it’s what we dream of. The living is so much more intensely appreciated. When we went around the table on New Year’s Eve and shared what we were thankful for – I simply said “this life.” I am thankful to be living this beautiful life. I am grateful in an intensely deep way – a way I never felt prior to this stage 4 diagnosis.  2016 was filled with living life to the fullest – it was beautiful.

new-yearsSo, bring it on 2017! I’m certain there will be tears. Perhaps my health will falter. But, I won’t live in the uncertainty of tomorrow. I live in the right now.

As I set my sites on the year ahead and continue to work at living life to the fullest I have two challenges for you – 1. Embrace a simple moment and 2. Live a big moment!   First, the simple moment – not a big special occasion, just a simple everyday occurrence. Don’t rush through it – embrace it. Dinner with your family, walking your dog, driving home, a bedtime hug. In a time when we are hurrying & worrying – allow yourself the chance to have gratitude for the simple.   Then, I challenge you to do something that makes you feel really, really alive.  When your kids are swimming in a cold lake – jump in and play with them.  Dance!  When you look out the window at fresh new snow – go make a snow angel.  In this moment – feel the blood pumping in your veins. Breath deeply.  Cherish the chance to be alive.

These moments are your life. The big and the little.  Embrace them – how lucky we are to be alive right now.

Cheers to 2017!

Lara

A burning hope

give-light-copySometimes I feel like I’m living a lie in my happy, thankful, hopeful mecca. Like on days like today, when I look through the facebook pictures of my friend Colleen who died of metastatic breast cancer. I look at her smiling face and travels with her family. I see how the posts go… joy, fear, hope, sadness… silence.

This is the reality. Metastatic breast cancer isn’t hopeful or happy. Actually, It sucks. With a vengeance it sucks the life out of people. It tears families apart. It rips young moms out of the picture. It steals hopes and dreams and futures of families every single day. About 111 people. Every day. Where is the outrage?

Despite my fury, I compartmentalize my fears and anger… otherwise It would suffocate me. And, frankly it doesn’t fit. I live in the light because that is who I am. Who I have always been. I have to love and play and run and celebrate. But, am I doing a disservice to those suffering to not write over and over and over about the horror of this disease.   Am I sugar coating the reality just like the billboard of smiling women who “beat cancer” and perpetuate this idea that we are “winning the war on breast cancer?”   Because we aren’t. We are loosing it. One mother, sister, father, daughter at a time.

Here’s the reality – I live with fear and anxiety every day. But, if I stayed there I would crumple. So, I step into the light and live life over cancer. I channel my frustration into our work at Hope Scarves. I go to holiday parties, cheer on my kids on the basketball court, have lunch with friends, live my life – while also carrying this burden of pain and fear. I’ve had to adapt to survive in this balance between death and life.

But, never at the risk of forgetting the reality – never to stop fighting and demanding more money for research to accelerate treatment options and extend the lives of those facing this disease. Facing death. To demand we shift our thinking and our priorities to better support those facing terminal, advanced cancers.   We deserve more than a pink ribbon and celebration of survivorship. We need to fight for our lives. Get scrappy.

So, I am actively networking with other likeminded organizations like MBC Alliance, Metavivor, Twisted Pink, MBC Project and National Metastatic Breast Cancer Network to figure out how to use my voice and resources to make the biggest impact. I’m overwhelmed that things aren’t moving fast enough as I watch friends progress and get kicked off of clinical trials that aren’t working. But, we all push on to do our part to move the needle. We have to.

As I find balance between anger and hope – I look to a special file I keep on my desktop. The stories of beautiful women who have died. These women shared their stories with Hope Scarves and we have the honor to keep their words alive. To live out their hopes and dreams each day through our work of sharing scarves and stories with people facing cancer. I find comfort in their hope.   Despite the reality that they were dying – they lived in the light. The awful reality is they are no longer here to hug their families. Research didn’t move fast enough for them.

May their words guide us as we find the balance between anger, activism and hope.

 

Do not let adversity change you. Make your best effort to improve the adversity.

– Jaime

If you’re told you have five minutes to live, are you going to spend even one minute of that five minutes being unhappy?  Not me. You want to be happy every single second of that five minutes…and so, I am!

– Mary Ann

My motto throughout this journey has been, “One day at a time.” I would never choose to endure what I have, but I did choose to learn from it. I don’t take anything for granted anymore. I live for today. I love harder than I ever thought I could. I’m a survivor because I’m living and thriving (some days) with late stage recurrent metastatic cancer.

-Heather

Don’t let the pressure of all the treatments consume you. Don’t let the sadness suck all of your life energy from you. Fight for your own spirit!

– Karen

And, one that speaks especially true to me this morning…

“What is to give light must endure burning.”

 

Thank you Jaime for reminding me that we must burn to be a light.

This is where I am today.

Lara

sweet 40!!

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Live in the light

*The feelings expressed below are those of an individual – Lara MacGregor. Hope Scarves is not a political organization and does not have an affiliation to a political party.  These words are not intended to represent the organization as a whole.*

xmas-card-pic9 years ago today our world changed forever when I heard the words, “Lara, you have breast cancer.”

I was at a salon with 2 year old Wills on my pregnant lap – getting his blond curls trimmed. As tears streamed down my face he placed a pudgy hand on my cheek and asked, “mama, you have a booboo?”

This moment changed our life forever. The past nine years have thankfully been filled with more joy than sadness. More laughter than tears.   When cancer returned to our life 3 years ago I thought our life as we knew it was over… after months of darkness I made a choice. I choose love over sadness. Hope over fear. Light over darkness.

It doesn’t change the fact that I have cancer. But, day in and day out I choose to live my life with hope.

I am always emotional on November 9th. But, I thought today would be a celebration of our future and hope over fear in more ways than one.

Instead I sit in disbelief that our country elected a narcissistic reality tv star as our president. A man who degrades women, mocks disabled people, deplores differences, encourages anger, stokes fear and divides people.   This is who we as a country believe will best lead our country… this is who “reflects us” as a nation… I am numb with disbelief and fear. I have become comfortable with respecting elected officials with different political views than my own… Hello, I have lived in Alabama and Kentucky for the past 13 years. I have really great republican friends!  We have different politcal views. However, I never question their fundamental character.

I have never had to explain to my children that the way the president talks is not an acceptable way to speak to another person.   I have never brought politics into this blog… but I feel so moved today that I had to.  This election isn’t about politics for me so much as it is about respect, honor, responsibility and compassion. And, my deepest hope is that our country will find a way to unify and move forward in a way that celebrates all that is great about America.

As I process the impact this will have on our world I am drawing on the same lessons I’ve learned these past 9 years facing cancer:live-in-the-light

  • Turn inward rather than lash outward. Find peace.
  • Turn heartbreak into something positive
  • Love, respect, be kind
  • Focus on connections and relationships – be good to each other
  • Live in the light, not the darkness

But, first I cry.  I always cry on November 9th.  Then, I find someone to hug and laugh with.

with love and hope, always.

Lara